Abstract Details

Title Advancing Team-Based Care for Spinal Muscular Atrophy: A Multi-State Project ECHO Initiative and National Education Strategy

Topic Child Neurology and Developmental Neurology

Presentation(s) S2 - Child Neurology and Developmental Neurology 1 (1:12 PM-1:24 PM)

Poster/Presentation
Number 002

Background An academic medical center, medical education provider, and faculty experts developed a comprehensive, multicomponent initiative, with Project ECHO® serving as the primary delivery platform. The goal was to help multidisciplinary, community-based teams across the US enhance care of their patients with spinal muscular atrophy (SMA).

Objective N/A

Design/Methods

We conducted monthly group tele-mentoring sessions using the proven Project ECHO model as our primary educational framework. Project ECHO creates collaborative learning networks led by expert interprofessional teams and includes de-identified patient case discussion, mentoring, and didactic presentations using a web-based videoconferencing platform to conduct virtual sessions with learners. Sessions were accredited for physicians and nurses. We assessed changes in knowledge, competency, and performance pre-/post-initiative and gathered participant feedback using online surveys and phone interviews.

We also created an accredited, online activity for clinicians across the country; its content aligned with that of the live ECHO sessions.

Results

Clinicians from 7 sites participated in the Project ECHO portion of the initiative. Sites included academic medical centers, community hospitals, and private practices. The online national educational activity launched April 27, 2022,with over 350 participants thus far. Learners for this initiative included neurologists, pediatricians, nurses, NPs, PAs, and other professionals who collectively care for approximately 1,000 patients with SMA on a regular basis.

Outcomes data and feedback revealed positive effects on learning and performance with statistically significant increases in knowledge and competency. However, persistent learning gaps remained post-education related to appropriate use of available and emerging treatments, suggesting areas for continued education.

Conclusions This initiative’s high level of interactivity allowed for in-depth exploration of challenges clinicians face in SMA management, which is not easily accomplished within traditional educational frameworks. In the setting of SMA management, where clinicians may feel professionally isolated, the ECHO model proved critical in improving quality of patient care and cultivating communities of practice.

Authors/Disclosures
Ana Carolina Tesi Rocha, MD (Stanford University) PRESENTER	Dr. Tesi Rocha has received personal compensation in the range of $10,000-$49,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Sarepta. Dr. Tesi Rocha has received personal compensation in the range of $10,000-$49,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Biogen. Dr. Tesi Rocha has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for NS Pharma. Dr. Tesi Rocha has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Novartis. Dr. Tesi Rocha has received personal compensation in the range of $500-$4,999 for serving as a Speaker at Symposium with Sanofi.
	No disclosure on file
Jenna M. Klotz, MD (Stanford Children'S Hospital-Child Neurology)	Dr. Klotz has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Genentech Roche.
	No disclosure on file
	No disclosure on file
	No disclosure on file