Abstract Details

Title The Chicago Movement Coalition: A Community-Partnered Intervention

Topic Health Care Disparities

Presentation(s) Health Care Disparities Posters (7:00 AM-5:00 PM)

Poster/Presentation
Number 014

Background Past studies suggest that underserved minorities are more likely to have delays in PD diagnosis compared to Caucasians and once diagnosed are less likely to receive specialized care. Inequitable care and delayed diagnosis lead to decreased quality of life and increased disability. Barriers to timely diagnosis and optimized treatment are multifaceted but include insufficient knowledge of PD in the community.

Objective

To establish a community-driven intervention for increasing knowledge of Parkinson’s Disease (PD) in underrepresented communities of the Chicagoland area. Here, we describe the development, structure, and preliminary outcomes of this program.

Design/Methods We identified two Chicago communities with large underrepresented minority and low-income populations. The Chicago Movement Coalition (CMC), a community-academic partnership, was formed with leadership including people with PD, caregivers, community leaders, and movement disorders specialists at two academic institutions. Two focus groups were held to identify community needs and inform the community-based intervention. Using the combined input, three educational workshops were planned and executed to increase knowledge of PD symptoms, treatment, and available resources. Workshops included an informational presentation followed by small groups led by people with PD and their caregivers.

Results

There were 127 participants across three community workshops of which 80 completed pre- and post-workshops surveys. Seventy-nine participants (99%) were satisfied or somewhat satisfied with the workshop structure and content. Seventy-eight participants (98%) noted that they felt more comfortable with understanding the signs, symptoms, and treatment of PD with 72 participants (90%) reporting an increased knowledge of local PD resources after the workshop.

Conclusions The CMC is a novel community-academic partnership established to address known inequities in PD. The coalition experience can be used to inform and structure future community-engaged education and research initiatives aiming to increase knowledge and decrease health and access disparities in PD across the country.

Authors/Disclosures
Jennifer Adrissi, MD PRESENTER	Dr. Adrissi has nothing to disclose.
Karen Williams (Northwestern University)	No disclosure on file
Emily Zivin (Northwestern Medicine)	No disclosure on file
Tanya Simuni, MD, FAAN (Northwestern University Feinberg School of Medicien)	Dr. Simuni has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for cadia, AcureX, Adamas, AskBio, Amneal, Blue Rock Therapeutics, Caraway Therapeutics, Critical Path for Parkinson's Consortium (CPP), Denali, Michael J Fox Foundation, Neuroderm, Sanofi, Sinopia, Roche, Takeda and Vanqua Bio. Dr. Simuni has received personal compensation in the range of $5,000-$9,999 for serving on a Scientific Advisory or Data Safety Monitoring board for of Koneksa, Neuroderm, Sanofi, UCB, AcureX, Adamas, AskBio, Biohaven, Denali, GAIN, Neuron23 and Roche. Dr. Simuni has received research support from Amneal, Biogen, Neuroderm, Prevail, Roche, and UCB and an investigator for NINDS, MJFF, Parkinson's Foundation.
Danielle Larson, MD (Northwestern University, Feinberg School of Medicine)	Dr. Larson has received personal compensation in the range of $0-$499 for serving as a Consultant for Acadia Pharmaceuticals.