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2024 Summer Conference | Summer Conference Patient Presentation Stage

Saturday 07/20/24
11:30 AM - 12:15 PM EDT Add To Calendar
Hilton Atlanta | Grand Ballroom
Event
Living with Rare Neuroimmune Conditions: Patient Views & Perspectives

Please join Sumaira Ahmed, NMOSD patient and founder of The Sumaira Foundation, for a panel discussion featuring five patients living with rare neuroimmune conditions. Patient perspectives and lived experiences are essential to guiding R&D efforts and generating real-world evidence for therapeutic advances. This is especially true for rare diseases such as NMOSD, MOGAD, autoimmune encephalitis and stiff person syndrome. Yet far too often, the voices of patients are overlooked, marginalized or excluded. This is an opportunity to hear directly from a diverse group of patients living with these disorders who are also actively advocating for their communities. Sponsored by The Sumaira Foundation.

Moderator: Sumaira Ahmed

Panelists:
• Christine Ha (NMOSD - neuromyelitis optica spectrum disorder)
• Nell Choi (NMOSD - neuromyelitis optica spectrum disorder)
• Tara Zier (SPS - stiff person syndrome)
• Nakeshia Nickerson (MOGAD - myelin oligodendrocyte glycoprotein antibody-associated disorder)
• Alanna Yee (AE - autoimmune encephalitis)